Washington, D.C. – U.S. Senator Bob Casey (D-PA), alongside U.S. Senator Johnny Isakson (R-GA), U.S. Senator Sherrod Brown (D-OH), and U.S. Representatives Gwen Moore (WI-04), Tom Cole (OK-04) and Jaime Herrera Beutler (WA-03) introduced the Scarlett’s Sunshine on Sudden Unexpected Death Act, critical bipartisan and bicameral legislation to combat Sudden Unexpected Infant Death (SUID) and Sudden Unexplained Death in Childhood (SUDC).
“This legislation is named “Scarlett’s Sunshine” after a little girl who was lost to Sudden Unexplained Death in Childhood,” said Senator Casey. “I wanted to honor Scarlett’s memory and make sure that the federal government is taking all possible steps to ensure that no family will have to suffer the death of a child, without knowing why. It’s appalling that over 400 children ages 1–4 and over 3,600 infants each year are dying from these unexplained causes. I urge my colleagues to join us in this bipartisan, bicameral effort.”
“On January 8th, 2017, our lives were shattered when our beautiful, healthy, thriving 16-month-old daughter, Scarlett Lillian Pauley, went to sleep and never woke up. And we do not know why," said Stephanie Zarecky and Ryan Pauley. "Losing a child is the single greatest pain we could ever imagine and living without answers magnifies the tragedy exponentially. We try every day to spread Scarlett's Sunshine, allowing her memory to shine on and bring light to SUDC, the medical mystery that took her from us. We thank Senator Casey for his leadership on Scarlett’s Sunshine on Sudden Unexpected Death Act in honor of Scarlett and all of the other children who are deeply loved and missed.”
“Among developed nations, the U.S. has one of the highest infant mortality rates – ranked 32nd among 36 countries – and every parent should be grateful to this bipartisan group of policymakers for taking action,” said John Kahan, founder of the Aaron Matthew SIDS Research Guild of Seattle Children’s Hospital and Chief Data Analytics Officer for Microsoft’s Corporate, External and Legal Affairs. “As a parent who lost a child, I know first-hand how this issue affects lives of those who will never be the same because of SIDS/SUID. This legislation modernizes our approaches to finding the causes and offers hope that we’ll prevent future deaths. From the bottom of my heart, and behalf of all parents who are haunted by this terrible mystery, you have my deepest thanks.”
“Scarlett’s Sunshine on Sudden Unexpected Death Act is vital legislation addressing the importance of a multi-faceted national effort to help reduce the numbers of infants and children dying of Sudden Unexpected Infant Death (SUID) and Sudden Unexplained Death in Childhood (SUDC)”, said Judy Bannon, Executive Director and Founder of Cribs for Kids, Inc. “Cribs for Kids is proud to support this legislation that will enable us to educate more families throughout the country about infant safe sleep practices and provide safety approved cribs to families in need.”
“Every year, at least 400 children over the age of 12 months are lost to sudden unexplained deaths in the United States,” said Laura Gould Crandall, Executive Director and Co-Founder of the SUDC Foundation. “While it is the fifth leading category of death among children ages 1 to 4, SUDC has not been directly addressed in our federal policy in regards to surveillance, research or prevention strategies. We can and we must do better. We applaud Senator Casey’s leadership on behalf of SUDC families worldwide and look forward to working with him to achieve our mission of a future free of SUDC.”
The Scarlett’s Sunshine on Sudden Unexpected Death Act would supply grants to help states, municipalities, and nonprofits to improve data collection and death scene investigations related to unexpected infant and child deaths, promote safe sleep practices, and ensure death reviews are completed for 100 percent of infant and child fatalities. Currently, there are no nationwide standards for investigating and collecting data following an infant or child death. This makes it nearly impossible to determine the causes of these deaths, and what strategies our country can implement to prevent these tragedies.
This bill has been endorsed by the American Academy of Pediatrics, Children’s Hospital Association, Cribs for Kids, First Candle, March of Dimes, Kids in Danger, SUDC Foundation, Within Our Reach, and the Aaron Matthew SIDS Guild of Seattle Children’s Hospital.